I found this the other day and joined:
https://www.facebook.com/groups/rsdcrpsbayareasupport/
I saw somebody at UCSF. Didn't get a dx there, but I'm in their system now if I need to go back. It took forever to get the appt. It was my pain doc that gave me the final dx. I thought I saw somebody say they had a wonderful doc in San Leandro. I'm in the North Bay so I'm probably not much help.
Feel free to PM me if you want.