Danboy,
I can't begin to imagine how agonizing that must be for you.
I know your post was directed at fellow full body suffers, but I do feel for you.

Mine is spreading to left foot and who knows when & where it will go?

I'm glad for your wife to become a practioner. Please, I do hope she is able
to help you and spread awareness for reasearch, and at the very least
validation to get better treatments.