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Old 01-04-2014, 11:47 PM
LoriLu97 LoriLu97 is offline
New Member
 
Join Date: Jan 2014
Location: East coast
Posts: 5
10 yr Member
LoriLu97 LoriLu97 is offline
New Member
 
Join Date: Jan 2014
Location: East coast
Posts: 5
10 yr Member
Default 49ers10

It is unfortunate you are not receiving proper treatment. My medical journey began with er refer to dr. then told can't help the other symptoms, went from dr. To dr. Thought I was crazy. Became knowledgeable and kept searching until I found one. Contact any informed brain injury knowledgeable professional you can find.

There has to be something on the East Coast even lawyers, maybe your ins. co. For specialists name, the neuro-chiro Mark gave advise on might be helpful. My diag. started PCS, ended up as MTBI. Central Auditory Processing Disorder is a part of some brain injuries. If communication is a problem ( taking in info., processing it and expressing it) write down what you need to say. If necessary just give them the paper. Never give up. You deserve treatment. Proper treatment.

Because brain injury cannot be seen people can't understand it. Even spouses, friends and family members. The young perceptive children in my life know without discussions. Have hope as better days are around the corner. Be easy on yourself. Listen to your brain it will tell you when to stop. Trying to push through it does no good for you or the healing process.

It will not reset or recondition the brain. Recognize professionals who really understand MTBI by using your knowledge to test them. I had an eval. by a university psychiatrist while inpatient asked him if he was familiar with CAPD - he was clueless I explained it to him. Do you think he was capable of proper diagnosis?

It is sad to say in the medical world the squeaky wheel receives the grease. TBI trained professionals are hard to find. Try forever if you have to. My fatigue, confusion and sleep greatly improved with seizure diagnosis and the proper medications. Best of luck. Lori
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