Quote:
Originally Posted by en bloc
Those numbers aren't too bad either.
How were you diagnosed with autonomic neuropathy? Do you have other autonomic problems (urination, GI motility, sweating, etc.)? Have you had the tilt table, holter monitor, 24 hour ambulatory BP, QSART, or any other tests in the autonomic battery?
What about autoimmune testing (other then ANA)?
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I have only had the ANA, Lupus, thyroid/thyroud antibody autoimmune blood tests, inflammation markers and Lyme all negative.
My sweating is decreased in my opinion. I dont really have symptoms of an autoimmune disease, I do have signs of Ehlers danlos type 3 I guess, but I dont see how people randomly get dysautonomia from it, only some sort of nerve damage. I am not diagnosed with neuropathy although I dont see how one can have dysautonomia without it...
Because my bp stays normal, I guess theres only damage to certain parts?
Tilt table showed a quick drop and recovery in BP not a huge drop either, valsalva was perfect, and sinus arythmia, hyperventilation etc, pupil dilation is perfect. So it seems my autonomic system is working, just seems the signals probably dont get to a certain area.
Now if I stand up and my hr goes up, if I bend over with legs straight it slows down, so the splanchnic area is my suspicion.
Sometimes I stand and my HR wont go up much but ill still feel crap, or not as crap, I dont get how it can work then not work kind of.
I'm scared of it getting worse and want to prevent any life threatening nerve damage etc. Is there any test in your opinion to get to check for autoimmune problems?