Quote:
Originally Posted by andybonse
I have only had the ANA, Lupus, thyroid/thyroud antibody autoimmune blood tests, inflammation markers and Lyme all negative.
My sweating is decreased in my opinion. I dont really have symptoms of an autoimmune disease, I do have signs of Ehlers danlos type 3 I guess, but I dont see how people randomly get dysautonomia from it, only some sort of nerve damage. I am not diagnosed with neuropathy although I dont see how one can have dysautonomia without it...
Because my bp stays normal, I guess theres only damage to certain parts?
Tilt table showed a quick drop and recovery in BP not a huge drop either, valsalva was perfect, and sinus arythmia, hyperventilation etc, pupil dilation is perfect. So it seems my autonomic system is working, just seems the signals probably dont get to a certain area.
Now if I stand up and my hr goes up, if I bend over with legs straight it slows down, so the splanchnic area is my suspicion.
Sometimes I stand and my HR wont go up much but ill still feel crap, or not as crap, I dont get how it can work then not work kind of.
I'm scared of it getting worse and want to prevent any life threatening nerve damage etc. Is there any test in your opinion to get to check for autoimmune problems?
|
Looks like you had some of the basics in regards to autoimmune testing. The following is a general list of most common autoimmune panel. Of course CRP & ESR are usually tested for inflammation.
http://labtestsonline.org/understand...bodies/start/2
If you are not having common AI disease symptoms like fatigue, joint pain, dry mouth/eyes (for Sjogren's), facial rash (Lupus), then your BP problems and feeling like crap may be from something else. Your BP is not consistent with autonomic dysfunction (because it corrects itself very quickly)...yet your seem to feel bad longer then your BP stays low. This is confusing. Can you duplicate your symptoms and make them happen (based upon position)?
I wonder if it would be worth getting an evaluation with an endocrinologist. There are hormones related to fluid/salt retention and usage that may be out of whack...like aldosterone. Have you considered this?
Here's a link to wiki for this and how it effects BP:
http://en.wikipedia.org/wiki/Aldosterone
Not sure if any of this is helpful...but may be worth looking into other AI disease labs and endo consult.