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Old 01-05-2014, 11:11 PM
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Sallysblooms Sallysblooms is offline
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Sallysblooms Sallysblooms is offline
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Quote:
Originally Posted by andybonse View Post
I have only had the ANA, Lupus, thyroid/thyroud antibody autoimmune blood tests, inflammation markers and Lyme all negative.

My sweating is decreased in my opinion. I dont really have symptoms of an autoimmune disease, I do have signs of Ehlers danlos type 3 I guess, but I dont see how people randomly get dysautonomia from it, only some sort of nerve damage. I am not diagnosed with neuropathy although I dont see how one can have dysautonomia without it...

Because my bp stays normal, I guess theres only damage to certain parts?

Tilt table showed a quick drop and recovery in BP not a huge drop either, valsalva was perfect, and sinus arythmia, hyperventilation etc, pupil dilation is perfect. So it seems my autonomic system is working, just seems the signals probably dont get to a certain area.

Now if I stand up and my hr goes up, if I bend over with legs straight it slows down, so the splanchnic area is my suspicion.

Sometimes I stand and my HR wont go up much but ill still feel crap, or not as crap, I dont get how it can work then not work kind of.

I'm scared of it getting worse and want to prevent any life threatening nerve damage etc. Is there any test in your opinion to get to check for autoimmune problems?
Your doctor thinks you have Dysautonomia? Postural Orthostatic Tachycardia Syndrome? Do you have a heart rate monitor for your wrist? Did you get the A1c test?
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Last edited by Sallysblooms; 01-05-2014 at 11:33 PM.
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