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Old 01-05-2014, 11:31 PM
Sissyt213 Sissyt213 is offline
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Join Date: Jan 2014
Location: Williamsburg, Virginia, United States
Posts: 8
10 yr Member
Sissyt213 Sissyt213 is offline
Junior Member
 
Join Date: Jan 2014
Location: Williamsburg, Virginia, United States
Posts: 8
10 yr Member
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Quote:
Originally Posted by triviafriend View Post
Hi everyone...I know that there have been several threads posted by members who are dealing with difficult withdrawal symptoms caused by Lyrica. However I believe that it's time to start recording the experiences of those suffering, so we can understand which symptoms occur commonly. Many people going through withdrawal are shocked by how sick they have become. Doctors and healthcare workers often don't know, or don't believe that stopping Lyrica can be the cause of so much misery. As terrible as it sounds, Doctors often react with anger or frustration when a patient complains of suffering because they don't want to assume any responsibility or accept any blame for prescribing something that makes a patient so sick. "You must be imagining things, or even lying or exaggerating,because this drug does NOT cause this level of withdrawal!"...Well, we know better.

I was prescribed Lyrica for RSD, 450mg per day. I made the mistake of running out when my pharmacy was closed. I became so sick that I was unable to get out of bed for more than two weeks. I was unaware that Lyrica caused withdrawal, so much so that I thought I had the flu! My husband picked up my prescription by chance one day, while having his own prescription filled, and brought it home. I was blown away to find myself completely well within an hour of taking my regular dose. Then and there, I made the decision that I would stop taking the drug. I had found the side effects horrific anyway, with the weight gain, mental foginess and emotional deadness I had been experiencing while on Lyrica. I began a taper immediately.

I started reducing my Lyrica by 25mg every 10 days to two weeks. It was rough, especially when I went down in dosage, and it took days to feel even marginally better. Still, I stuck it out, beginning in January 2013, and finally finishing in July of the same year. A long, slow taper, I know, but I went as fast as I felt I could, enough to keep the withdrawal symptoms at bay so I could function. Many have found, like I did, that quitting cold turkey was virtually impossible, due to the fact that the terrible illness of withdrawal would just go on and on, never getting any better. I've heard of people sick for months while going through Lyrica withdrawal.

Reading about the experiences of others going through what I was going through was an enormous comfort to me. It made me feel that I wasn't crazy, that I was one of many who had been taken in by promises of pain relief without fear of addiction or withdrawal (that's what I was told!). The following is a list of the symptoms that I experienced during withdrawal from Lyrica. I encourage everyone to add your experiences to this thread as well. Believe me, there are lots of people suffering right now who will visit this sight and be comforted with the knowledge that they are not alone!

LYRICA WITHDRAWAL SYNDROME

Exhaustion, coupled with insomnia (horrible combination)
Depression
Crying jags
Rage
Extreme episodes of sweating
Chills
Inability to regulate temperature
Headache
Nausea
Stomach pain (often described as stabbing pain)
Severe Anxiety
Restless Leg Syndrome
Body aches
Muscle contractions
Vision problems
Suicidal ideation
Difficulty breathing (hard to take deep breath)
Lack of desire to socialize in any way
Mood swings

I know that more symptoms exist, and I hope that you will add your own experiences to this thread. Only by bringing this terrible issue forward will we ever convince anyone...Doctors, health-care workers or Pfizer itself to do something about the irresponsible way that this drug has been fed to us all, and force them to take measures to at the very least inform the public of the risks that taking Lyrica bring.
Ok, so here's the conundrum! I'm on 600mg of Lyrica along with methadone 10mg 4x a day (which I'm getting ready to titrate down due to a pain pump being put in) as well as 5/325 mg percocet. Now I know that I have to go off the methadone. I'll stay on the percocet as needed for breakthrough pain but I'm not sure about the Lyrica. I take all of my Lyrica at night to help me sleep through any breakthrough pain so that I can get through the night without having to wake up in the middle of the night just to take more medication for my pain, and since the 600mg does get me through an entire night, why not. However, with the fact that I have the pain pump and I'm on morphine through that pump, I don't know if I'll need to go off of it or just lower my dosage. I've never had to experience the withdrawal symptoms since I've never been without it in the first place. I've always had plenty. It's always shipped directly to me by the VA. I've also never had any side effects from it either, unless some of the weird things that have been going on are related to this, because some of the things that one of the other people posted about their side effects kind of stuck a chord with me. I have been experiencing blurred vision over the last year which come to think of it is about the same time frame that I a started on the higher dose of the Lyrica, as well as the severe joint pain that I've been having. Severe pain in the joints in my fingers, hips and knees. Maybe I need to bring this issue up with my Dr. Most people on this forum probably have issues with talking to their Dr's about this and having them believe then, but I love my Dr's because they listen to me and one that I'm not bsing them and they respect what I say to the because they know I know what I'm talking about as I use to be a nurse. That being said, I pray that I never have to find out because of you had that with the 450mg, I can't imagine what it would be like if I had to do it from a 600mg standpoint. I hope I never have to find out! Btw, the reason I have a pain pump and that I take all the medications that I do is because I have MS and I have severe chronic nerve pain from the damage that the MS causes! Just FYI

Last edited by Sissyt213; 01-05-2014 at 11:46 PM.
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