Quote:
Originally Posted by Nanc
Hi guys!
Well, I sure am tired...been awake since around midnight last night. Tried to take a nap and slept about 5 - 10 minutes. I have been having major pain the past several days. Just when you think the pain can't get any worse...it does 
Many of you know from my previous posts that I was recently diagnosed with interstitial cystitis. I had what had to be the worst pain attack (down there) over Christmas at my parents house. I saw my urogynocologist yesterday (just love him) and discussed the type of pain I experienced, thought it might be another condition that sometimes goes along with IC. Well, we talked, he examined me and decided that it was not IC or any condition related to it. He feels sure that it is RSD related. As much as I hate hearing that, it makes sense because the type of pain (lightening bolt, electric shock-like) is just like the pains I get elsewhere, only worse. UGHHH! I am so tired of this...I know you guys can relate to this emotion.
I am also getting nervous about my surgery tomorrow to remove both SCS's I cannot take vitamin C because it could cause my IC symptoms to worsen. I just hope all goes well and I don't have RSD spread in my back.
Thanks for listening 
Nanc |
Hi Nanc,
I am so sorry!! You will certainly be in my thoughts as you recover from your SCS(s) removal - fingers crossed that you don't have spread from this procedure!!
I'm with you on thinking the pain can't get any worse and then WHAMO it does. The last few days have been utterly miserable for me as well
... I'm actually contemplating risking another surgery to remove the damaged nerves and neuroma(s) that are in my hip because at least one doctor said that the only way to reduce the pain is to get rid of the source. Other doctors of course have said NO WAY you will be worse... but, I just don't know how I can keep going like this
I just don't know.. frustrated like you (and many others on this forum), scared and just plain angry at the whole situation!
Since you didn't get spread from the initial implantation(s) that is a good sign, I think?!
Did the your urologist offer anything in regards to what may help your bladder pain issues? Did you ever ask anyone about the suppositories I mentioned a while back?