Quote:
Originally Posted by zookester
Hi Nanc,
I am so sorry!! You will certainly be in my thoughts as you recover from your SCS(s) removal - fingers crossed that you don't have spread from this procedure!!
I'm with you on thinking the pain can't get any worse and then WHAMO it does. The last few days have been utterly miserable for me as well  ... I'm actually contemplating risking another surgery to remove the damaged nerves and neuroma(s) that are in my hip because at least one doctor said that the only way to reduce the pain is to get rid of the source. Other doctors of course have said NO WAY you will be worse... but, I just don't know how I can keep going like this I just don't know.. frustrated like you (and many others on this forum), scared and just plain angry at the whole situation!
Since you didn't get spread from the initial implantation(s) that is a good sign, I think?!
Did the your urologist offer anything in regards to what may help your bladder pain issues? Did you ever ask anyone about the suppositories I mentioned a while back?
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Thanks Tessa! I am sorry you are having such a rough time. I guess you are up in the air about what to do when your doctors do not agree. I know that has to be frustrating. Keep me posted on what you decide?
I did not experience spread in my back with the implantation, so hopefully that is a good sign. I did develop a problem in my back after implantation, hope that is resolved when they are removed.
I completely forgot to ask the urogyno about those suppositories...
i remembered after I left. I will ask him for sure at my next appt or sooner if
I need to call him (made myself a note). We tried medications that I hadn't tried before and had baaaaaad reactions, so medication treatment is out. He mentioned botox a few times and when I had it for my migraines, I broke out in a rash on my neck and chest within a couple of hours. Dr wants me to get allergy tested to see if it was the botox or the agents added to it that caused the reaction. If it turns out that it was not the botox itself, he wants to inject that in the bladder. We will see. For now, I have to do the IC diet and low oxalate diet...hard to figure out what I CAN eat with that on top of my food allergies and no gluten