Murgir,
I don't think there is a "normal" with this crazy disease.

As usual, Bram said it very well & I appreciate that because i can't keyboard
very much.

I wonder about many weird symptoms as well. My Dr. & I think it's spreading to my foot even though I guess the spreading most often "mirrors" to the same opposite limb. However, I do not have all the symptoms in my foot.
When my hand & arm were dx'd i had ALL the symptoms to the extreme!

I often feel as if someone has a voodoo doll of me and likes to do weird things to it. (bad humor)

So yes, how does one know what to do? All I know is to keep things moving as best I can & "work" through the pain.