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Magnate
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Join Date: May 2007
Posts: 2,049
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Magnate
Join Date: May 2007
Posts: 2,049
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Dahlek
After reading about your experience with IVIG it is making me wonder what really went on with mine....hmm. I didn't seem to a have any problem what so ever, now I wonder if it was strong enough or pure enough or consistent enough. I never asked what 'brand' I got, I just assumed it would be the same...
I never had a single blood marker of inflammation, however, a few months ago I had an extremely high ANA on Elisa, 2.37, and Elisa though unspecific has only a 10% false positive rate. They redid all the autoimmune testing and said it was all negative. I know one high ANA does not make a case for anything, but I am getting weary of all of my 'false positives', such as my PET scan. I mean how many 'false positives' can a person have? I wonder if that high ANA was to some antibody they have not identified yet...lol and I am sure my IgG lyme titer was still negative, despite it being positive IgM, and considered positive in New York state and many other states. If some docs don't like the results, they discredit the labs...I dunno. (I had a tick bite, and EM rash and physician confirmed acute case with rising titer that was aborted by amoxicillin for 20 days....no IV treatment) I have a million reasons to have PN....I wish they would just pick one at this point!!! I know that is irrational, but I do understand that is how we all get to feeling after a while.
Sorry, but I am having one of those 'pessimistic' days today...
I know finding etiology on 'idiopathic' is very tough, but when you get told something abnormal is a 'false positive' so many times, you gotta wonder.
Last edited by cyclelops; 05-24-2007 at 12:26 PM.
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