Originally Posted by Willow_Makk

I don't know that there is a way to cope if you just drop all meds and treatments. This disease just gets worse and worse the longer you have it. Every doctor I have seen tells me that the quicker it is diagnosed and treated the more the damage can be retarded.
I have had CRPS/RSD for 7 years and the best thing I have found is Ketamine infusions. They gave me back my normal pain free life. When I started them 2 yrs after DX, 40% of my body had CRPS and the pain had me bedridden and suicidal. I was on 100mg of MS Contin 2x a day, 40mg of Oxycontin up to 6x a day, a 75mcg Fentynol patch, Lyrica, Clonodine, Neurontin, and Topamax. After 6 months of infusions the pain was back down to the original site and I was able to come off all the meds (with the help of Suboxone). After another 2 infusions even the Suboxone was gone. I went back to work and life went on normally except for that 1 day a month.
Don't give up Hun. The place you end up is not pretty. I know feeling like a guinea pig is not fun but you can find what works for you so you can at least manage the pain.

Willow
May you walk in the eye of your Gods!