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Originally Posted by liz0323
Well, as of right now I'm definetly leaning towards doing it. At the minimum, I've decided going through the trial is worth it. I discussed the risk of the spread with the dr, but as its already spreading into my left arm I think that making one area stop hurting might be worth it. I take a lot of medications for the pain, but they don't ever stop the hurting. My pain is never gone completely, and I'm very worried about never being able to stop with the pain medicine. I don't want my stomach to be destroyed in 20 years from all the pain killers. It just seems like there are so many horror stories about going down the drain with the need of eventual increases in medication and the strengths ( Even though I rely on medications now, The land of super heavy duty painkillers that people end up on seems like such a bad idea ) . The same goes for the scs though. I've found more terrifying stories than positive ones. I didn't know if that was just because angry people tend to post more, or if that was a clear demographic of results. The worst one I saw was ending up paralyzed and incontinent.... I figured asking the community of people who have been there would be best. Has anyone had success without complications or are there ALWAYS complications to be expected?
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Hey liz! It is good that you will be able to do the trial, at least that will give you a good idea of what to expect and if it feels beneficial. I totally understand what you are saying about medications, they can be so harsh and harmful. I cannot take any of those meds, so I am not dealing with that part of it, just trying to deal with the pain. My pain management dr recommended a pain pump, but because of my numerous allergies, my PCP and I decided it was not for me.
I think that angry people do tend to post more. People that are feeling good are less inclined to post...in my opinion. You will find horror stories with pretty much everything. You just need to weed thru them and the good stories to help you decide. I have read good stories on here and I do not think there are ALWAYS complications. Hopefully some of those folks will chime in to help you.
Is your dr looking at putting in a cervical SCS or thoracic? If thoracic, I would recommend that you get paddle leads instead off percutaneous leads, paddles are less likely to migrate.
Good luck to you!
Nanc
