Hello Heidi,
I am sorry you are dealing with such awful pain. Have you asked for an increase in medication?
I live near you, and I do have the name of several Pain specialists in my area. One of which does Ketamine infusions. (He did for spinal trouble) I don't know however if he treats with that for CRPS. It may be worth it to call and find out how experienced either of these doctors are with this condition. PM me and I will give the name and numbers of these physicians. I really hope you can find some relief, so you can again enjoy some of life. Don't give up hope. I know for sure Tampa Bay Hospital works with Ketamine. ginnie