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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Welcome aggie :)
Quote:
Originally Posted by aggie
Hi all
I joined to chat with others who may have experienced post chemo - peripheral neuropathy. I now realise that there are so many other neurological conditions and I salute you all for rising to life and battling on!
Glad to join you all
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So nice to meet you. I had Serous Uterine cancer and went thru 6 rounds of chemo (taxol/carbo). The chemo was from Dec 2012 to Mar 2013. I was considered pre-diabetic going into to this. Exactly a month after chemo ended I started having trouble with my feet and hands......thought the chemo was trying to 'get' out of my system so I worked in the yard a lot for 2 weeks.....by then I could hardly walk. Went to my regular dr and she immediately said 'neuropathy'. I did not know a lot about neuropathy but then realized that was why my onco would ask about my hands and feet prior to each chemo treatment. Long story short......I had to pretty much be my own advocate.....jumped around to dr's trying to figure out how bad it was and what I could do about it. Had all the blood work done....everything ok except my A1C was up to 8.7 which was probably caused by the chemo. Nerve test was also ok. Onco brushed me off and said it would get better. After 1 visit to a foot and ankle dr I asked for a skin punch biopsy because I had read about small fiber neuropathy. He did the biopsy and I have no A and C fibers left. Diagnosis is Severe Small Fiber Neuropathy. The dr told me there was nothing he could do for me and that I could only try pain management. He said out of 0 to 15 on the scale he could work with 4 to 7....mine results were 0. Said the nerves cannot be regenerated.
So there is my story. The last year had been a medical nightmare. I am now seeing a neuro I don't like very much but have an appointment at Emory Hospital in Atlanta, GA on March 25th. My new onco (was not comfortable going back to the one that had originally treated me) said going to Emory was my best bet to get some quality of life back.
I am a 51 year old grandmother......laid off from my job of 26 years just 2 months prior to cancer diagnosis.
So there you go.....welcome to this site and it's very nice to meet someone else who has chemo related PN.
Debi from Georgia
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