Hello all...

I have an appointment at the end of this week with Dr. Lam at Johns Hopkins for testing and evaluation for bilateral TOS. I have a few complications which will not help, such as Ehlers-Danlos Syndrome and cervical issues. In looking back, I think the symptoms have been around for awhile and I've just been blaming them on my bum neck and they are progressively getting worse. My PT is the one who figured out that TOS might be to blame instead, and my local ortho agrees, so off I go to JH. On my right side, I have a malunion clavicle due to a car accident years ago; on my left, the only thing I can think of is that I took several blows to the brachial plexus back in 2006. At the time, it caused loss of vision fields in my left eye for several days and a headache; after CT scans, etc. were done the final diagnosis was opthamalic migraine and "bruised" carotid. It seemed to resolve, so not sure if that's even the issue or not.

Thanks and I look forward to learning from you all!