Hi there,
All of the sudden -really, I can't figure out what triggered it- all my symptoms have become worse. Once again, it hit me hard and it makes me a bit angry and sad.

I was finally able to do stuff around the house. Little, silly stuff yes, but I was still very proud and happy I was able to do simple things like emptying the dishwasher or even sing a long with a whole song! Three minutes long! And when the air was nice outside, I went outside and took a deep breath. I really did appreciate how good it felt to be able to breath. Like a normal person. It felt sooooo good, I believe I got many happy hormones released in my body when I took that breath.

But a few weeks now I'm, once again, bedridden and I'm too weak to talk, hold my own book, sit up straight, walk, etcetera.
My head however is not weak, and wants to do stuff. I have -yes, once again-this conflict in my head which is a pain. I do not want to lie down all day anymore. Not when I can be up and doing stuff! I feel terribly locked up. But I want to fight!

My most disabling problem is te shortness of breath. I truly HATE it. So I have been doing some searching. And found some interesting stuff I haven't tried yet (ventolin f.e.) so I'm standing my ground (hehe, well, matter of speaking) and asked my family to help me get those medicine and try them out one at the time.