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Old 01-15-2014, 09:26 PM
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Vrae Vrae is offline
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Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
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Thanks so much to all of you. I just get ticked off that my mind doesn’t work the way it used to (much like my body) and over the course of the last couple of weeks, it’s been frustrating at best. Before I talk with doctors or specialists I have to give my 30 second elevator speech (I have one now). “I have a neurological disease that is rare and affects my minds ability to recall specific details about things, or I get lost while we’re talking…. Please forgive me. “ I’m a note taken fool right now, and overwhelmed at the sheer volume of professionals and paperwork and research I am dealing with right now for her. Of course I love her and she’s worth whatever needs to be done. I hope that just goes without saying. I guess I’m complaining here because you all get CRPS’ debilitating affects and trying to function in spite of them.

They have a vision specialist that she will be seeing that will help decide what the actual cause is. But knowing what I know about myself and my vision issues with CRPS… a light bulb went off. Hot damn! My brain does still work from time to time.

I am finding that I am having to close my eyes while I am trying to recall or relay information quickly.

I’m trying to take care of myself, really I am. I am soaking in my tub fairly regularly now. That allows me at least time to exhale and get my oooommm (zen) on. That’s total me time. It’s just remarkable how exhausted I feel daily. It’s also remarkable what I have accomplished in the last two weeks. Okay… yes! I rule!! LMAO… ahhh. And oh yeah, there’s been some chocolate intake too. Thanks again to all of you!!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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"Thanks for this!" says:
Lottie (01-15-2014)