Kmeb:

I completely agree with you. Alan has his next neuro appointment on June 21st. Now if she doesn't return my call (I placed the call last night), well, do I keep calling her and tell her what happened.

How about I write everything down, and fax it to her office to her attention. That way I will know that she got it and that Zoya doesn't need to tell her. I have no idea if her assistant Zoya even gave her my message.

I think I should write up everything and fax it to Dr. Goldfarb. What do you think??

Also, what would you do it the next time, the nurse insists that 3 hours are just fine!!!!!??? Let's say the nurse starts the infusion and (I'm no drip expert by the way), but I can now tell if it's a slow drip or a little faster drip), and I say to the nurse "the label says 4 hours", and the nurse goes into her spiel about "No, he'll be fine". And all the while he's hooked up to the IV.

Now what exactly would ANY of you do in that circumstance. You can't stop the infusion. Do you put a call through to the neurologist (who you can't reach by the way). Do you call the pharmacy department of the IVIG company??? Do you call the visiting nurse company????

I mean, should this ever happen again, I want to KNOW EXACTLY WHAT TO DO ON THE SPOT.!

THANKS,

Melody