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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Right now I take 90 mg of mestinon 4 times a day and 180 at 10 pm before bed. If i have a bad day, I take 120, 4 times a day and 180 at night. I had the episodes when I stop breathing at night and wake up choking and gasping for air. I have not had it again since mt last IVIG, done for breathing issues. I am going for a sleep study, the pulmonologist thinks I need a c-pap to help me breathe at night.
Are you on an immunosuppresant? I take cellcept and have found a general improvement in my MG.
Try going to a neuromuscular specialist at a large teaching hospital. They generally treat more aggressively and with more than just mestinon.
hope you feel better
kathie
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