AZ-Di, I couldn't agree more with Tessa. IMO she is totally on point and (at least for me) the way in which she is describing spread; mine has been identical. I have type II with identified nerve damage in my spine. I have what they call "Cold" RSD/CRPS. I only have swelling from time to time. The swelling since surgery WAY back in 2004 has developed in my limbs in the last year or so.

So sorry that you are struggling with all this, and wish I had something useful to add. I hope you can get some help soon!