Quote:
Originally Posted by VitamanB6
Hi All,
New kid on the block!
My name is Andrew. I had my first seizure at two weeks old. I spent the first six months of my life in and out of hospital. Doctors were mystified by my illness. None of the ‘normal’ antiepileptic drugs that were administered had any positive effects. At this time I was having many ‘different types’ of seizures a day some of which went status. Countless tests were being done including, EEGs, lumber punctures… etc. A top paediatrician from the main city hospital told my mother that he was going to a meeting. He said he would talk about me in the hope that someone there would be able to help us. At this meeting there was a professor who was doing research into childhood epilepsy. He suggested a trial of Pyridoxine Hydrochloride (vitamin B6). Pyridoxine Hydrochloride was administered (I was five months old). Within two to three days my mother noticed a big difference in me. I’d stopped having severe seizures. Because of the positive effects that Pyridoxine had on my seizures doctors slowly weaned me off all the antiepileptic drugs (this was back in 1970-71). I’ve been prescribed Pyridoxine Hydrochloride on a daily bases ever since.
I have also had a late diagnoses of both Dyslexia and Asperger's Syndrome (AS).
Some of my interests include Computers, Computer Aided Design (CAD, both 2D & 3D), Cosmology, Biochemistry, Vitamins (mainly vitamin B6), Geometry and Solving Puzzles including the V-Cube 7 (a 7x7x7 version of the 3x3x3 Rubik's Cube).
Looking forwards to hearing your stories,
Andrew
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Hi Andrew!
My 5yr old son, Scott, has recently been diagnosed with pyridoxine dependent epilepsy. We have been searching for others with this rare genetic condition to network with! Would you be willing to share information with us? We are aware of all the medical research out There but would love some personal experiences so we can give our son the best care. We look forward to hearing from you!
Lisa (mom) and Scott