I too have done lots of research on what we fight thru everyday so I can not only have the knowledge but it helps when you have to explain to a doc and/or nurse who have never even heard of RSD/CRPS I lost count on how many times I've had to explain to docs & nurses. I don't mind the questions I get Id rather get more knowledge of rsd out there & Ive thought of so many things I'd love to do but cant right now. I have so many ideas one being a website deadicated to rsd/crps where people who have it or know someone with it can go & get info on different things like a local support group or if they need help with finding a doc or help getting to a doctor I have lots of ideas about how to help other people with this condition.
I think this site is awesome & of course all of you are too & having the support has been a godsend, but Id like to also have a in person support group I think it would be great meeting other people in my area who deal with the same thing I do ya know what I mean, maybe do like group socials out having drinks or dinner things like that it'd be fun. Anyways that's just some thoughts I had of what Id like to do got a bunch of ideas maybe we can all work together & do something