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Old 01-19-2014, 08:48 AM
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Hi and welcome

Sorry you've got to be here at all, obviously , but if you have CRPS this is the place to be. Some great folk here with loads of support..

I haven't had an SCS either, but I don't like the sound of this pushy doc - have you seen a different specialist for a second opinion? I know the pregnancy hormones can cause an easing of some symptoms, but I don't know much about it myself, as I was lucky to have my children before my CRPS. A member called Allanira has just had a baby while dealing with CRPS, and had some good information about everything she dealt with.

There is stuff you can do through pregnancy to help your CRPS without endangering your baby, as I'm sure you know after having it for so long! Sorry if you know this lot, but I'm talking about unperfumed Epsom salts (in the bath, wrapped in a damp cloth on the burning, rubbed in as a paste) - your body really needs the magnesium in it. Vitamin C daily is a good idea too. The other things that really help me are gentle exercise, stretching, massage and meditation. I was very sceptical about how much they could do at first, but over the 2 1/2 years I've had it, they are things that have done the most in terms of controlling (and helping me cope with) the pain.

I take low dose Lyrica, it's the only med that's really helped me. I've tried other pain killers and patches and nothing really happens! This disease is so different for everyone, and some find a med combo that controls things, others don't.

I'd definitely seek a second opinion, you sound as though you aren't sure on the care you're getting, so another point of view would be good. Sadly some docs do have very set ideas on treatments, and you need to get the whole picture before making a serious decision like having an SCS put in.

Take care and I hope you're having a better day today

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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"Thanks for this!" says:
Allanira (01-19-2014), mlerae (01-21-2014)