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Old 05-24-2007, 03:59 PM
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Teretxu Teretxu is offline
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Join Date: Sep 2006
Location: Asturias, Spain
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15 yr Member
Teretxu Teretxu is offline
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Join Date: Sep 2006
Location: Asturias, Spain
Posts: 172
15 yr Member
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Ok, Carolyn, the very first symptons of dystonia began with a stiff neck. I stopped wearing blazers and coats with high collars because I always ended up with neck pain. Go figure. Then came constant back pain - always muscular pain, mind you.
Then one day I realized that my left hand had lost some movement and my left arm was stiffer.
But the very first thing that I think could have been an initial sign of PD-related dystonia was that one day (I was not 30 years old yet) I suddenly couldn't breath right. I was unable to fill my lungs, as if my chest muscles weren't working properly. My GP sent me to a heart specialist and he found nothing wrong, but said it could be stress related.

Dystonia, as you know, is a sustained, involuntary contraction of one or more muscles - any muscles or all of them. Stiff parkies suffer badly from dystonia, tremor dominant parkies not as much.
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