Interesting, RSD from stroke.... Did anyone ever mention Central Pain Syndrome to you? It is also rare, but I believe stroke is the most common cause. However, I don't think CPS causes the hair and nail changes that RSD does. If you have CPS and not RSD, that might make a difference as far as spreading and your toe. You might do a little reading about it, see if it fits better than RSD.
http://www.ninds.nih.gov/disorders/c...ntral_pain.htm

CPS can also be caused by RSD, which is what my neuro thinks may have happened with me, and why I know a little about it. Me? I think the RSD just moved into my spine, as it has spread over time.

Sorry you are having to deal with this!