Hi Renee, I'm sorry you are having such a lot of spread...it is very scary stuff, and talking about that isn't whining
I've got cold CRPS too, although I get my fair share of burning too

, and mine has spread from the original site in my left knee, to my whole left side, and my right foot and hand. Only recently it's spread across into my left breast. That's a barrel of laughs...
I don't know. It's impossible not to panic a bit Renee, it's perfectly understandable. I try to live day to day and not think too far ahead. Looking ahead seems pretty scary at times!
Take care,
Bram.