Quote:
Originally Posted by zookester
Hey Nanc,
I am sorry you are having such a rough time of it! Near the area of nerve damage that caused my CRPS II if I touch that area it will send an ice cold rush down that nerve path even though it feels as if the skin has been removed and someone is pouring alcohol or salt on it BURNING constantly. I really hope that is just your sensory nerves healing normally. One thing you might want to do right away is start desensitizing that area by touching and stroking it with a flat palm, soft cloth etc., this will help the nerves respond to good stimulation and can help reduce numbness that often occurs after surgery along the incision site. I remember my doctor telling me that spread should be treated as a new diagnosis and treated aggressively as soon as symptoms start. That is what I am doing with my arms and they haven't worsened as quickly as my opposite leg.
Sure hope you turn a positive corner soon!!
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Hi Nanc. I hope you're feeling a little better today. I don't have CRPS II, but know that with CRPS I that surgery with rsd takes a long time to heal. (at least in my experience.)
And Hi Tessa, I wanted to thank you for bringing up drs wanting to treat spread aggressively. I thought that's what they wanted to do with spread too, and was surprised when the NP at my pm drs office said to wait until spring to talk about treating my rsd spread. I need to talk to my pm dr next month and ask him to treat is asap. If they don't want to I think I will be seeing a new pm dr asap. I sort of feel like they have given up on me since I've had rsd for over two years and don't qualify for a SCS anymore. I don't think that I'm going to make them much money anymore so they just don't seem to care as much. (maybe I'm wrong, but my gut is saying otherwise.) I'm also going to try to wean off the percs that they are giving me. They say I don't take a high enough dose to have it affect my organs, but I feel sick to my stomach when I take them anymore. They do help with the pain, but at what cost? It's just not worth the risk to me. I hope that new drug gets approved for RSD (Neurondrate (sp?) so that maybe we can all take it and get rid of RSD once and for all.
And Nanc, I'm sorry again for getting sidetracked. I wanted to tell you too that when I was healing from my surgical wounds, I felt like a ping pong ball with my drs. None of them could explain the prolonged pain I felt and would pass me on to the next dr until I finally had my pm dr and endo dr say that I probably had rsd spread. Also, that was around the time I got fibromyalgia too. My neurologist confirmed that. I hope that doesn't happen to you, but just be careful to tell all your drs every pain you feel and have them document it, so that you are sure they don't just push you off to the next dr to try to explain your pain. Take care my friends. My thoughts and prayers are with you all, in hopes that you all have a pain free as possible day today. With love, Renee.