Hi, and welcome. I'm sorry you're having so much trouble getting a diagnosis. That's the worst.

Many people who have MG have negative blood tests. First, there are several different kinds of antibodies the doctor could test for, but a lot of times he only tests for the most common kind. Second, some people test negative at first, but positive later on. And then there are also many of us who never test positive--probably because we have a kind of antibody that they don't know how to test for yet.

People who test negative can be diagnosed by EMG, but it's a special kind of EMG called a "single fiber EMG" (SFEMG). Do you know if you had this kind? The doctor inserts needles into your muscles and leaves them there for several minutes while you clench the muscle slightly. There are no shocks. Regular EMG's aren't very good at diagnosing myasthenia gravis.

Most neurologists would give someone in your situation a trial of a drug called Mestinon (pyridostigmine). If it helps a lot, that's pretty good evidence that you have MG.

It sounds like you need to go to a doctor who specializes in diagnosing neuromuscular diseases. Maybe your current neurologist could recommend one. When my neurologist couldn't diagnose me, he sent me to a specialist a couple of hours away who could.

Don't stop asking questions. A lot of your symptoms are certainly consistent with MG.

Abby