Quote:
Originally Posted by AZ-Di
Sorry to side track this thread, but I have that exact sensation on my original location. Of course I'm not glad for either of us, but when I try to explain this people look at me as if I've become just overly dramatic. It feels as if there's a new incision with tabasco sauce poured in. Thanks for the insight about spreading.
|
Side tracking a bit more.. sorry Nanc.
Az-Di, I totally understand that "look" I don't think most people can even fathom the types of pain we have.. even most doctors. One doctor whom I love actually understands it quite well and one day when I was expressing how much worse my deep bone pain was getting from the top of my femur to my foot - he said that "I could probably feel the blood moving through my bone marrow" that is how sensitive our nerves are. That made sense and shocked me to hear how much he understood what we/I are going through. He is also the doctor that recommended the Mexiletine which is helping some.
The look I have trouble the most with is when trying to explain to someone how the cold temperatures affect my pain.. they give you that look like "my joints hurt to when it is cold" .. the actual air hurts me like someone is holding two live wires in my legs like lightning bolts... then the "look" just like you said.. I don't understand why shingles get's so much attention on TV commercials and in magazines etc., I've had shingles and yes it hurts like heck (no offense to anyone) but seriously why can't they do a commercial for CRPS oh yeah because they can't fathom this type of pain! grrr.
Okay... I'm done thanks for the side-track Nanc. Thinking good thoughts for you tonight!