Quote:
Originally Posted by Kirky
Thanks for all your kind advise.
I am 44 years of age and have had a very active life in sports, but also on the social side and this is why I mentioned alcohol. I have been given the electrical tests and they came up positive after complaining about the bad sensations I was having in my feet. True enough I was found to have a mild neuropathy. However, the Dr's were interested as my father is a 10-15 year sufferer of PN. But they found no connection between the two of us through blood tests taken. Which was a surprise. I am still awaiting other results like B12. The decision on stopping alcohol and other things on my list in my action plan are all my idea as I want to test to see if my symptoms can be reduced or at least slowed down.
My main question that I feel no one can really help me with is how much time to I have? My work requires me to be on my feet as I am a professional soccer coach. Will I be able to continue with this? If not am I doing damage to them now by still working and occasionally running and demonstrating. Even though recently I have slowed right down and try and Direct more and have others do the work for me. It may be better just to change my approach to my work. I guess the next stage is to go to complete management where all I do is talk and not deliver.
No one knows in my work that I have this condition. I am trying to hide it.
Kitt. What else can one take other than Gabapentin for the fuzzing in the feet? If I do go up to 1800 mg will my fuzzing just stop, but then have many side effects?
Wow so many questions Kitt. Thanks again for talking to me. I hope you are OK and finding a way?
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Here is a site which might help you. Scroll down to "Summary".
http://www.ncbi.nlm.nih.gov/books/NBK49247/
CMT is also known as
Hereditary Motor Sensory Neuropathy (HMSN).
As far as polyneuropathy it just means several nerves are involved.
You referred to electrical tests which were positive. I assume you are talking about EMG/NCV testing. Referring to CMT Type 1, nerve conduction speed is slowed. In CMT Type 2, the nerve conduction speed is usually normal or mildly slowed but the responses to the stimulus are small. Just a bit of information concerning the testing.
As far as alcohol, moderate consumption is fine. Alcohol was taken off the medication alert list in 2004. If you over do then you would have balance problems, etc. and that would not be good for those of us who already have that problem. But moderate consumption is not a problem.