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Junior Member
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Join Date: Dec 2013
Location: uk
Posts: 47
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Junior Member
Join Date: Dec 2013
Location: uk
Posts: 47
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nothing makes sense with a rare disease
I am only 26 and yet for some reason, I have developed neuropathy in my vulva. I have been forced to give up any hope of ever having a boyfriend again or even children.
I can't share my pain with others out of fear they will avoid me or think I'm crazy. not even my own mother understands. Doctors have been useless so far.
I have also been forced to give up on an active life, I can't walk much or else become very tired and my nerves will wake up and start buzzing like they like to do.
I no longer have friends. My life involves going to university for a few hours, then rushing home to rest. I don't know what to do. NOTHING makes sense anymore. I hope to become an accountant but worry I will never get a job with this health problem.
I have very dark thoughts. Nothing makes sense. Not even religion gives me relief. Everything seems like an elaborate nightmare.
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I have...vulval nerve pain
I take...50 mg Elavil/Ami, 150 mg LYRICA
+magnesium oxide (works for me)
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