Yikes, that sounds like a nightmare. You poor girl. Hang in there, and talk to the people around you about how you're feeling with all this going on and a chronic disease that is the most painful condition to have. You will end up more ill yourself if this goes on too long - especially the sleep thing.

It's so hard not to feel judged. I was feeling it last night when I had to ask for my daughter to do something for me, and there was this little hesitation, and I could tell she was thinking I ought to just do it myself. They have no idea how much pain we're in...and sometimes you just have to tell them. Again. It sucks.

Try not to feel guilty or responsible for the situation you're in. Sounds like you're doing everyone you can, and then some. You didn't ask for this to happen to you, and you're certainly not enjoying yourself much. Small babies are such hard work, I'm full of admiration for what you are coping with right now. It will get easier. You have to believe that!

Take care of yourself and make sure you are getting the food and meds you need. The issues with your meds etc are ridiculous, just keep battling away at them like you are. Maybe ask your doc if he would like to try walking that mile in your shoes....and then judge.

Bram.