Hi Allanira, I think one of the most frustrating things next to being in constant excruciating and debilitating pain is having people think you're okay because you "look" fine. My NP at my PM drs office told me last week that she has seen alot of rsd patients that were worse off than me. I wish I said something because I was so appalled by her insensitive and inaccurate comment, but was too shocked at the time to speak. I will tell my PM dr next month when I see him for my med check. People need to understand that just because we "look" fine, it does not mean we "feel" fine. In fact, we don't feel fine. We have more pain with rsd than just about any other chronic illness. I am trying to hand out pamphlets on rsd (from rsd hope) to try to educate people on this disease because so many have never even heard of this condition. I hadn't either until I got it. Unfortunately it seems to me that alot of my DRS and NP get offended when I ask them if they have ever heard of rsd. They don't like to admit that they don't know everything and then pretend that they do. If they weren't so ignorant and egotistical about what they do and don't know, then maybe they would have a cure for rsd by now. I tried handing a paper to my NP from rsd hope regarding the new drug that may help rsd patients if the FDA approves it. The NP threw it back at me without even reading it and said she never heard of it. I find that hard to believe being that they link up with RSD websites. But she didn't want to take the time to read it because she was in a hurry (I'm guessing to go home being that it was the end of the day.) Hopefully this won't happen again when I try handing out pamphlets to my other DRS and NP. I intend to keep doing this until one of them finally takes the time to read it. And maybe then they will try to understand that though we "look" okay we do not "feel" okay. Knowledge is Power. Hang in there Allanira. Some people don't get it, but I do and everyone else on this forum does. I hope that you can find comfort in knowing that you're not alone. I hope you can get some rest soon too. You deserve a break after all you've been through. My prayers are always with you. Sincerely, Renee.