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Old 01-24-2014, 08:41 PM
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Nervous1 Nervous1 is offline
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Join Date: Jul 2012
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10 yr Member
Nervous1 Nervous1 is offline
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Join Date: Jul 2012
Posts: 117
10 yr Member
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Hey Synnove,

Thanks for responding! Im sorry you are experiencing these issues.
The muscle spasm that you speak of with your neck and scapula sounds alot like my issue. Almost feels like a "tug of war" going on between my neck and scapula. Did the methotrexate or plaquinil or prednisone help with the muscle spasms or inflammation that was noticeable to you? Which one helped the most?

Thanks,
N1

Quote:
Originally Posted by Synnove View Post
hi, my neuropathy was digagnosed about 1 year ago. A little time, a few months, before that I was diagnosed with autoimmune leukocytoclastic vasculitis. I have been treated for this autoimmune condition with Plaquinil at first, then Methatrexate. I have had some treatment with Prednisone for periods of times for flare ups.
The small fiber neuropathy started to get much worse 1 year ago and I have been treated for those symptoms with Lyrica and Amitripthyline.
My rheumathologist have been testing me for all different autoimmune diseases in addition to the small vessel vasculitis. All of them have come out negative.
But I have started to have more joint pain now , with some swelling etc. I had some Ex rays done.
My rheumatologist said she thinks perhaps I have rheumatoid arthritis. I know the RH factor blood test and ESR was negative.
My rheumatologist said that perhaps I got the neuropathy, and more of the arthritis are showing up now. I have migratory joint pain in wrists, fingers, shoulder knees and feet/ankles.

The neuropathy is a burning pain all over. Some times when the neuropathy flares up, I have PARESTHESIA IN ARMS WITH PIN AND NEEDLES, and the musles feels like MUSLE SPASM. aT THEESE TIMES, i ALSO FEEL AS IF THERE IS PULLING IN MY MUSLES FROM MY NECK AND ALL DOWN ALONG THE SCAPULA. I DEFIND THESE SYMPTOMS AS MUSLE SPASM, and I think it is due to the neuropathy.
So I was thinking, you asked if any one else had theese symptoms. Yes, I do have inflamatory issues, and neuropathy
The pulling and spasm often requires massage for relief.
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"Thanks for this!" says:
Synnove (01-24-2014)