Thread: Newly diagnosed
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Old 01-25-2014, 01:44 PM
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AZ-Di AZ-Di is offline
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Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
AZ-Di AZ-Di is offline
Member
AZ-Di's Avatar
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
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Hi Kristin,
Welcome but sorry you have the reason to be here.

I will echo pretty much what everyone else has said, which is good for
me as I'm limited on keyboarding now.

That's part of the mystery of this disease, is that it's so different for most
everyone. There is no specific drug for this so, no cure either. Everything
rx'd for us is "off label". There are some similarities too and learning & sharing
on this forum is most helpful on many levels.
Vitamin C can help & there's no harm.

Some of my experience:
I've had 21 nerve blocks (stellate ganglion) now. The 1st one was a disaster!!
Then I found an excellent P.M. Dr. with 1st hand experience with RSD/CRPS. I've had some success now. Some improvement at first, now they seem to keep the pain at manageable levels.

I did a trial SCS but decided the benefit wasn't worth the risk to get the permanent. PLEASE, PLEASE do your homework on that & there's a subforum
on here just about that. I needed lots of help with personal care just during the trial & that is not convenient to say the least.

If you have RSD/CRPS it will be ongoing, so my advice is to try & stay away from narcotics as much as possible.

Since you're a nurse reading through med. terminology will be easier.
__________________
RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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