Susanne hi. I am sorry to hear of your condition and your families conditions. If it is CMT, which is suspected, at least I have had a good time of it upto now. I actually now worry about my son and have I passed this onto him? But I have told myself to not let that get in all the other mess in my head too. Just too much.

I am fit and can walk and run. I have symptoms, and yes it will progress. But you are right I am in charge here. I have to decide what is best, what to do and what not to do. I am a teacher by profession. It is something I can defiantly do in future years if needed.

Good to chat with you again.