Thread: Newly diagnosed
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Old 01-25-2014, 10:53 PM
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
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Nanc Nanc is offline
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Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
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Hi Kristin!
I have not attended any support group for this. Have been looking for one in my area though. You should search on rsds.org for a group in your area. Having your husband's support and understanding is so important. Maybe the psycologist you will see will have some suggestions to help you and help him get there. I am very lucky that my husband does get it. Have you shown him the McGill Pain Index? I showed this to my husband and he said it really sheds light on the severity of RSD/CRPS. He had me show it to family/friends who didn't get it. Here is a link to it: http://tuum-est.com/MEDICALJUSTICE/McGill.html

Do you have a primary care dr who could give you something until you see your new PM dr? My PCP is the one who actually manages my meds. I was gonna suggest melatonin because so many people swear by it. I cannot take it - gives me a bad headache. My PCP has had me try diazepam (valium), but it doesn't make me sleepy. I have trouble sleeping, so I am not sure what else to recommend.
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AZ-Di (01-26-2014)