|
Member
|
|
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
|
|
Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
Good morning Sharon :)
I think the tests and dr path you're talking about will help you find what is wrong.
I have severe small fiber neuropathy as a result of diabetes and chemo. Mine started full blown in my feet one day last may and has now progressed. I do feel deep aching in my legs and my upper right arm. It's not like the pins, needles, electrical shocks etc that I feel in my feet and hands. I cannot walk or stand for extended periods of time. And like you, if I lay down a couple of hours it does help but the pain is still there just not as severe.
Everyone's answers on here pretty much go back to everything you want to be tested for and that is a good idea. My EMG/NCV test was normal and was done at the beginning of my issue starting. The dr that did it was a little snide and pretty much wrote me off. I realized I had to be my own advocate and went to a foot and ankle dr that I asked to do a skin punch biopsy after my 2nd visit to him. Dr's don't have to assume anymore that it's 'small fiber neuropathy'. This test is now the gold standard in diagnosing SFN. I only had 2 biopsies taken from the ankle area but it turned out that I had 0 A and C fibers in my feet. I do know that they can take from the ankle and thigh area so that may also be an option for you.
I am on gabapentin/neurotin and up to 1800 mg a day. My neuro got me up to 2700 mg a day but I could not think straight and he lowered it back down and added Cymbalta 60mg a day. I've been on that schedule for 2 weeks and so far I have seen no lessening in my pain levels.
Hope some of this info helps you. Please keep us posted and come and talk anytime you need to...we're here for you and welcome to NT 
Debi from Georgia
|