Member
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Join Date: Nov 2011
Posts: 576
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Member
Join Date: Nov 2011
Posts: 576
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SO glad to hear you were doing so well, but i'm sorry that things started to decline a bit too! Yes, my muscles get a little funky the night of and next day or two after my infusions - more twitchy (i'm twitchy all the time and have been for many years).. but the first few days its worse and then it improves a lot around day 4 or so.. Hope your feeling stronger at least! (Oh, and I do get nausea, stomach upset, headache etc with ivig as well - though I drink a TON of water, and that seems to help, that and a slow rate of infusion)
Good luck!
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