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Old 01-26-2014, 08:15 PM
Sham Sham is offline
Junior Member
 
Join Date: May 2013
Posts: 57
10 yr Member
Sham Sham is offline
Junior Member
 
Join Date: May 2013
Posts: 57
10 yr Member
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Not sure, they have diagnosed it so far just as hereditary sensory and autonomic neuropathy, have mentioned cmt, but I can not afford the testing for it. The new neurologist wants to do another emg test, and a nerve biopsy. He also mentioned spinal tap, but I am not doing that unless it is a 100% must. The nerve test is bad enough. I am concerned about the biopsy because in reading the forums it has brought more pain then people have had prior to having it done, so it worries me.

Quote:
Originally Posted by Kitt View Post
Just curious as to what type of hereditary neuropathy you have. Would you mind sharing? Thanks much.
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"Thanks for this!" says:
Kitt (01-26-2014)