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Originally Posted by Sham
I completely agree with you and would have my children as well. I know that God's plan is so much better than anything I pray for, that is why I pray if it is his will. I just feel like, for me, going through this has given me a greater perspective of what he went through for us and am grateful for that. This probably sounds insane but I actually praise God for this because I know there is a reason behind even though I may never know what it is. You are right there are many things worse. My oldest complains of leg pains, has extremely flat feet, and has difficulty running so I will keep a watch on him. But, it could be too much reading on my part. You are always so helpful, thank you so much. I appreciate it.
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My eldest son always complained about his feet and ankles, since he was a toddler. We tried very hard to make sure he had good shoes with ankle support. He also walked with a very loud, slapping gait, although he was extremely light. I had no idea then that I had CMT, but these were undoubtedly early signs in him. I don't think you are reading too much into it.
If I had had access to my father's family medical history we would have known much sooner. That there isn't any real treatment is some consolation, but it would have been helpful to know. I would have been gentler on both of us, without such high expectations. My mom always said I was lazy because I couldn't run or play sports and I internalized that message so deeply I still have trouble knowing what I should and shouldn't do. I am inclined to push myself too hard. A friend has agreed to help with the housecleaning which will be such a relief.