Quote:
Originally Posted by joby7165
Thanks Nanc!
The first botox injections did help ut only a little bit and the thought of getting CRPS in my skull is pretty scarey stuff. When I asked my neuro what might be the cause of a build up of spinal fluid at the base of my brain stem his response was lets just wait till we get the results of the MRI with contrast. I hate when they do that.
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Yeah, having RSD/CRPS in your head would not be fun...I know it is not fun in my face

I really wish I could've tolerated botox better! If I could tolerate it, I would definitely get again since it helped so much and I rarely get relief.
It is good that you are getting that MRI. Hopefully the dr will be able to tell you something after that. I do hate when they will not tell you anything or about what they are looking for. I guess they don't want to say anything wrong. Keep us posted on the results.