Quote:
Originally Posted by bny806
yea, I think it's hard for them since they haven't been through it personally themselves..this forum helped my sanity while i was in the hospital.. and is also the reason that I told the staff to slow down my infusion rate therefore controlling my side effects- the staff didn't mention rate at all to me.. thank goodness for the internet!  |
Have you had MG for a long time? I have been dealing with this for years but they just gave me the diag. Dec 2013. I have an appointment with the Mayo Clinic in March. I have been so severe since Aug it is hard to function. Just trying to find out as much as I can.