Thread: New here and diagnosed with SPS
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Old 01-29-2014, 08:07 PM
clstewart81's Avatar
clstewart81 clstewart81 is offline
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Join Date: Nov 2013
Location: Alabama
Posts: 49
10 yr Member
clstewart81 clstewart81 is offline
Junior Member
clstewart81's Avatar
 
Join Date: Nov 2013
Location: Alabama
Posts: 49
10 yr Member
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Quote:
Originally Posted by RidesBlues View Post
my wife has been dealing with SPS since October of 2013, is having IVIG treatments and diagnosed with HepataCellular Carcinoma (liver cancer).
Her other autoimmune issues are:

diabetes on a a pump.
cecliac disease
thyroid disease (removed)
ulcertative colitis (colon and large intestine removed)
With all the above except SPS and liver cancer she lived a full life and was a grandma , horse riding jockey in 50 mile endurance horse races. The SPS and liver cancer have been life changing at the moment.
I am throwing myself into learning everything I can for my wife of 33 years.
are you getting IVIG?
We are living for the moment and believing for a miracle.
RidesBlues
Hi! Good to hear from you. I am appealing my insurance company because they denied my IVIg treatment at the beginning of January. Right now, I am on baclofen, (was on zanaflex but I developed an allergy to it, made me hallucinate!), remeron, steriods, cymbalta, lexapro, subuxone (pain), and Iron. Keep in touch!
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Obstructive sleep apnea, Stiff person syndrome, fibromyalgia, anxiety, and MDD (major depressive disorder)

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