Hello Grace,
I also have the Dystonia that you have. Happy to email with you. Mine is due to late stage RSD, You? I am sorry that you developed this. I hear that some comment...sort of like there is nothing anyone can do but make you comfortable. They can be really frightening. I am here for you. We must enjoy all we can, right, Grace. We share like age as well.
All the best ,Jaydenkiley