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Old 01-30-2014, 12:31 AM
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PamelaJune PamelaJune is offline
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Join Date: Dec 2013
Location: Where my heart is
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10 yr Member
PamelaJune PamelaJune is offline
Senior Member
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
Default Hey

Quote:
Originally Posted by chrelsey View Post
I have had my SCS for five weeks now, and have experienced a 60-75% reduction in pain. Not only was I able to get off Oxycodone, I've been weaning off of the Hydrocodone for the past week. My goal was to be all the way off of it in a couple of weeks. So far, so good.

Until today.

It started yesterday with just a nagging ache in my back. I thought it was just the position I had been sitting in to cross stitch. Last night when I went to bed, I turned my stim UP higher than I have been using it because of my increased pain. When I woke up for the second time around 3 am, I was in excruciating pain. It wasn't unfamiliar pain - it was my old familiar pain, and boy, was it bad. I got in the recliner, and that did nothing to alleviate it at all. I'm contemplating taking my normal dose of hydro, instead of the half-dose I've been taking.

But here is my question. I know that I'm still an SCS newbie. I don't know what is normal, and what isn't. So is it normal to be going along just fine, and then have such horrible pain? To me, it feels like a set back - like I've done something wrong (which I haven't, that I can think of). Does this maybe mean I just need to call my rep for a re-programming? Should I be concerned? Or, are bad days every now and then just the norm?

Ok - that was more than one question, sorry!

Thanks for any insight that y'all can give. I'm trying not to be discouraged, but it's hard. We are supposed to go to our daughter's baby shower on Saturday, which is an eight-hour drive there back, and I was so excited that I was feeling better and was going to be able to go. Now just the thought of walking into the kitchen to get my morning coffee seems daunting.

Blessings to all.

=Becky
Hi Beckie
My rep and PM doctor have both told me that nearly everyone who receives an implant wants to be completely free of the drugs, and while it's an excellent aim, the reality is most of us will still need to continue taking of the dugs we have grown to hate. So, in my limited experience, I have been told when the pain begins to swing, take the medication and don't let it get to screaming stage, because once it reaches there, it's much harder to get a handle on it.

Probably not the news you want to hear, but remember, the implant hasn't cured us of our original condition, it's another aid to help minimise the pain and take control of our life.

I do hope you enjoy the weekend and the drive there not as tough as it sounds.
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