Hi Debra,
sorry for the way it's going for you.
I believe it should be your call.
The way I see you need to find a doc that would do the surgery.
Let me share my story.
I have a rod in my arm from the shoulder to elbow that when I fell last time is now sticking through my arm bone just below my shoulder. I can feel it under my skin.
I have an ortho doc who will do the surgery and he also told me about the risks with RSD, but since I took too long deciding, the bone sealed around the rod.
Since it's my arm it's my call. He'll have me sign a release of responsability before the surgery but he's waiting for my decision.
It's a hard decision understandably. Nobody wants their RSD to spread!
I hope you find relief. I hope we all do!
Take care...