Thanks everybody. No I do not feel better about this Bram. Like most of you I do not believe "IT WILL BURN ITSELF OUT". I also know it can spread. Just thought like most of y'all all know, there a few doctors that really know about this disease!!!!! I understand though because I am probably the only one he has ever seen for this, so he has had no reason to look into it. I can tell that he is caring and is open to the research I have done. After seeing them, I know what articles to take to each on my next visit. I ran into the neurologist one day before he saw me as a patient and told him I have this and he said you need to come see me " Jan, I heard that hurts like hell" So he does get some of it. Oh well I feel like a teacher now!!!! Gotta do my research before the visits I have to pay for. They are both really nice and I am going to give the PM doctor another visit. I am from a small town and there are very few doctors around here. The next close town is an hour away and there are none familiar with this there either. A friend lives in a large city 4 hours away and she is yet to find one who deals with this there. So meanwhile I will just do my homework