I am sorry for your struggles. I understand it is hard. Have you talked to your doctor about the loss of balance and what possible things you can do in terms of lets say pool therapy that can help you? I know it is hard to not be able to do things you want to or used to be able to. I feel the same way. I am working on this myself on finding some new things I can do that can add some happiness in my life. Someone mentioned therapy and have you thought of that? I know it wont take the pain and limitations off but it can help you feel less alone and cope with the condition. Hang in there